SEN, or Finlay-Marks syndrome is also called Scalp, Ear and Nipple syndrome. Characterized by scalp, ear and nipple abnormalities, Finlay-Marks Syndrome is a rare, autosomal dominant condition, whose gene locus is still unknown. Those afflicted may have bumps on the scalp, underdeveloped and hypopigmented nipples, or even lack of nipples, and cupped or folded ears. Brittle fingernails and widely spaced teeth are other manifestations of this syndrome. Fortunately fewer than 200,000 people in the US are affected.
There is scant information about this disease online for free.
Read more here:
NCBI
http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=181270
If you have SEN, (or any other rare or orphan disease) please contact the Making Contact website. This site allows people with like conditions to make email contact.
http://www.makingcontact.org/index.php?ci=602
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